Castdom

1 1/2 weeks in cast, 11 weeks to go.

While Kaia is adjusting fairly well to cast-dom, I must admit I'm having a harder time with it. I hate seeing my baby wrapped up in fiberglass (casts are now made out of fiberglass and lined with a soft padding rather than plaster). I hate that she is no longer squishy and cuddly and it bothers me how difficult it is to change her. We have had a few poo-splosion and honestly, they suck. I change her bum many more times per day than I use to pre-cast, but I know that sometimes she has leaks and it BOTHERS me to NO END that pee and poop may at this very moment be sitting next her delicate baby skin and I can't CLEAN IT PROPERLY!!! I can do nothing but try to shove the diaper as far as I can up the hole left open around her lady parts and wipe the inner cast lining that I can reach like crazy when the diaper leaks.

The big problem is that the cast comes up so high. Kaia can chew on the on top part of the cast. It stretches from under her arms down to her ankles with cut outs at her belly and her diaper area. I've seen other babies in spica casts and their casts don't come up nearly so high. I don't know why Kaia's is so large, but it's something I want to talk to them about when she gets her cast changed on February 13th (the cast gets changed once at the half way mark). It probably had to be that high to stabilize her hip, but damn if it doesn't make EVERYTHING so much harder. It's so high, she can't put her arms down to her sides and I can't comfortably breast feed anymore. Not that we breast fed a lot, but usually once or twice a day I'd let her have a bit of a nibble...now we're strictly on bottles because I can't hold a stiff 7 kg kid at breast height for any length of time. Kaia is wickedly heavy in the cast and she can't lay on her side on a pillow as her legs stick out in frog position.

My back has been the other big issue. I've had a sore back for months now and I think I'm really going to have to go for some chiropractor or physio help. The jump that Kaia had from 6 to 7 kg overnight didn't help matters, and it puts a lot more strain on my back now that she's so stiff. No longer can she 'meld' into my body like babies do when you hold them. She's basically like an armor clad starfish.

I know I'm going on and on about this, but in my real life people don't really seem to get it. Even Brian is like "it's not so bad". Everyone keeps saying things like "well it's only for a few months" and "at least it's not life threatening" and "it's a good thing she's a baby, she won't even remember it". My answer to the first is that a FEW MONTHS is a very long time when it's something you have to deal with every single minute of every single day. The cast wouldn't be as bad if we could remove it, even for short periods, but it's a constant thing that has changed many of our daily routines with her.

And yes, of course I'm glad it's not something life threatening...because OH YEAH, we dealt with that LAST YEAR!!! And it was AWFUL. So yes, I understand life threatening, and yes, I'm glad this isn't, but I don't think it's too much to ask to have the words 'normal' and 'healthy' attached to your kid rather that "dislocated left hip".

The one that really gets me is the 'good thing she's a baby' comment. Because yes, it's SO much better that she can't tell me what is bothering her (sarcasm) and I have to guess from the intensity of her whining how serious it is. It's like people think babies are somehow unaware of their environment and 'get use to things' easier than an older child or adult. Honestly, I think that's baloney. Kaia has definitely been more crabby and fussy since going into her cast, and it's not like I can explain to her why she's in it or how it's helping her. All she knows is she can't move her legs and she can't reach her toys like she use to and mommy no longer breastfeeds her or is able to hold her close. Being immobile sucks at any age, which I feel particularly sympathetic to (HELLO BED REST) and causes your body to hurt in ways you never thought possible.

I also wonder what the cast is doing her her psychologically. Maybe nothing. But I wonder if it will affect her mood or personality down the line? I know being in the hospital affected me a lot as a child (although I was older), so whose to say 3 months in a body cast before the age of 1 won't 'scar' her mentally.

Anyway, I know we'll get through it. It's not like we have a choice. It just feels like a very long time, especially now that winter has really set in here. There are no holidays or family parties to look forward to, and I'm fairly house-bound with a heavy, poopy, crabby baby.

Doesn't that sound like a party?

***Update***

The above was written on Saturday. I never get my posts up the same day I write them anymore as I get interrupted by Kaia demands before I have time to proof read or spell check, so I figured I would update in the same post and let you know that we've found somewhat of a solution to the poopy problem.

Yesterday Brian bought a whole box of puppy 'piddle pads'. You know the thin plastic backed absorbent sheets that you use while house-breaking your dog? Yeah those. Brian had the ingenious idea to cut them into 8ths (so they are about 4 inches wide) to act as a 'runner' down Kaia's back to rest between her and the lining of the cast. We tape them lightly to back outside of her cast, then thread them down the back, absorbent side towards her skin, where they emerge from the poop hole cut out in the cast. Then the diaper gets shoved between the piddle pad runner and her bum. If she happens to have a poop that shoots up her back, it lands on the runner and not the cast! We've been sticking with this set up for over 24 hours now and I haven't had to wipe poop out of the cast once. YES!

Also, I made a chiropractor appointment for tomorrow. I'm excited to hopefully get rid of this awful back pain.

And now for some pictures which someone asked for.

The first two pictures are of Kaia 'undressed' except for the diaper shoved in her 'diaper hole'. A larger (size 5) diaper goes over the whole thing to help contain everything, although it doesn't get dirty that often. The second two pictures are her in my new favourite outfit. Brian got her these knock off Baby Legs for Christmas and I love how bright they are. And yes, it does look like Kaia has giant Dolly Parton boobs when she's dressed. Since clothes have to stretch to fit over the cast she's in size 6 to 12 months even though she's 4 months corrected and prior to the cast was just outgrowing all of her 0-3 month clothes.

Without further ado, Kaia, in all her cast glory!

Spica Hell: Suck fest 2012

Cast day 5.

Every year for the past few years we seem to get lobbed a shitty circumstance that is totally out of the ordinary to what other people 'generally' have to deal with and Brian and I and our families have to navigate through it and hope like hell we can hold it together.

Now so far, the spica cast hasn't been quite the same hell that a dead baby (2010) and an endangered pregnancy and subsequent 50 day NICU stay (2011) was...but hey, we're less than 2 weeks into January!

Last Friday Kaia went in to surgery at around 11am. Brian and I found this step more stressful than we had anticipated. I was awake since 3:15 that morning because I couldn't sleep and we had Kaia up at 5:45am to eat her last bottle before she was "NPO" (nil per os = no food, a fancy way to describe torture to a baby). It was really weird walking into the hospital where I work and being the parent of a child having surgery. One of the nurses I use to work with was the first person I saw walking into the day surgery unit where Kaia was scheduled that morning and I hadn't seen her since I left the NICU in 2010. She didn't know about either Aidan and Kaia, so after regaling her with that long story (and almost having her in tears), she made a big fuss about how cute Kaia was and how this spica cast thing won't come close to the ordeals we've had in the past.

True...I guess...but it's still pretty sucky.

After Kaia's surgery we were whisked down for an urgent MRI. Apparently Kaia had woken up from the anesthetic in the recovery room screaming, and they were afraid something was wrong with her hip position. However, the MRI went well and the hip is in place in the cast. Now we just have to wait 12 weeks and hope that her pelvic bone grows sufficiently around the ball of her femer creating a working hip.

We brought her home the next day (Saturday), and it's only today (Tuesday) that Kaia seems more herself. Last night was the worst night yet. She was SO upset and cried from about 10:30pm to 1:30am and finally fell asleep only after we dosed her with the morphine the hospital gave us a prescription for. Kaia's never been exactly 'easy' to settle at night, but this was TOTALLY over the top. I was one dose of morphine away from calling the orthopedic resident on call at the hospital and yelling at him "WHAT DID YOU DO TO MY SWEET BABY?"

Let's hope tonight's a better night and Kaia returns to her happy normal self.

Cuz if not, this is going to be a LOOOONNNNGGGG 3 months.

New Year

We started the New Year off right last night by having our friends J & J over and their daughter C, who is 18 months old. It was a lot of fun and I had a good New Years. Much better than last year, where I was 5 weeks pregnant, had an ear ache, was afraid to take Tylenol and couldn't wait to pour myself into bed.

We've really made the most of the holidays this year. On December 27th we packed up Kaia and all her crap (3 small bags, 2 giant suitcases, 1 stroller and car seat and a partridge in a pear tree) and traveled 6 hours in the car to visit Brian's grandmother, returning home on the 29th. Grandma is 90 and in the hospital. Brian hadn't seen her in 5 years, I've only met her a handful of times and she's only seen pictures of Kaia. After my grandmother died this past summer, we felt it was important for Kaia to meet her last remaining great-grandparent. I still feel badly that I never went to see my grandmother in the hospital after she broke her hip and before she died, so as much as it was a lot of work, it was worth the trip to make Brian's grandmother's day.

Kaia had an excellent (and busy) Christmas Day. Didn't get much of a nap, but what kid does on Christmas? She got lots of toys and clothes and a rocking horse to use when she's older. We did put her on it and got this face:

And this one:Kaia has really found her voice the past few weeks. We now get screeching and babbling and even some real laughter. She really likes it when she has the hiccups and you imitate her by making 'hiccup' noises. She thinks it's hilarious and so do we.

Now that it's officially January, we are in countdown to cast day. It's only 5 days away. I'm hoping it's going to be easier and less stressful than I'm fearing. It's just that the cast feels so intrusive. Like it will change everything we've gotten use to and feel comfortable doing with our baby. She will have to be diapered differently, sleep in a different place, won't fit in the same clothes, and we'll need to buy or rent a car seat that will fit her. We won't even be able to carry her the same way. She can't be held under her arms; we have to pick her up under her cast to avoid it pulling down on her body. I'm trying not to worry about it too much, but it's hard now when cast day is so close. I'm sure we'll get use to it...it just that it sucks that we'll HAVE to get use to it.

Despite this cast business, I must say I feel more positive and upbeat looking forward to 2012. I have so much to be grateful for and am looking forward to learning about Kaia's personality as she grows. I'm hoping this year will bring us a more peaceful, routine lifestyle. I hope we will feel calmer, happier, more prosperous and less stressed and sad than we were for most of 2010 and 2011. So far, it's looking good!

Onward 2012!

Christmas Eve

One year ago today, I woke up early to make sure that my pregnancy test was negative before stopping the Progesterone. To my utter surprise, it was positive. It felt like a Christmas miracle...that went totally off the rails come March.

Yet here we are one year later. Preparing once again for the Christmas festivities at our relatives' houses, but having to take into account nap times, pumping schedules, diaper bags, and bringing extra changes of clothes in case of 'poo-splosions'.

It's wonderful.

This year has been a crazy ride. From the highest of highs to the lowest of the black, deep, dark pits, and back into the light again. I feel so incredibly grateful for life to be as good as it is right now.

I often look back on this last year and wonder "how the hell did we get so lucky?!!" Because we did. I know we did. When I think of all the terrible things that could have gone wrong between the time of my water breaking, to when Kaia was born, I shutter and internally shy away from remembering those awful weeks. I still to this day cannot read my blog posts between March 24th and July 9th of this year. It just brings back the hurt and the fear, and I'm not ready to mentally revisit that time yet.

People often wonder why bad things happen to them. I know I did after Aidan died. Why did he die? Why my son? Why him? Why our family? But the other side of that, is of course, questioning why do good things happen to us? Why did Kaia live? Why did we get so lucky? Why did she beat the statistics and come out (almost, dislocated hip aside) perfect? The nurse practitioner I was telling my story to at Kaia's pre-anesthesia appointment this week said that 'it gave her chills'.

Too true, lady.

I don't know why things worked out so well for us the 2nd time around. I don't know if it's something I did or didn't do. I don't know if it was luck or genetics or fate, or some combination thereof. If so, why did Kaia have it and Aidan didn't? I will never know...but I am eternally grateful for the life and health of my second child. And I'm so happy to be celebrating the holidays with my wonderful husband, and little miracle girl.

I hope all of you out there in blog land find some peace and joy in your lives this holiday season.

Merry Christmas to one and all.


And sloppy, drooly, kisses from Kaia.

Have you ever questioned why you got 'lucky' either baby-making or otherwise? How did you reconcile yourself to the fact that others don't?

Twelfth Night

It's 10 days 'til Christmas and Twelfth Night occurs 12 days after Christmas (January 6th). Twelfth Night has religious and historical significance, and is the name of a very funny play by William Shakespeare which I really enjoyed reading in Grade 9.

This coming Twelfth Night has now taken on a different significance...

It's the date set for Kaia's surgery and casting.

And it's only 3 weeks away!

The surgeon's secretary called me yesterday to tell me the date and I about fell off my chair. I was thinking we weren't going to be scheduled until February at the earliest. I figured I would have some time after Christmas to start thinking and planning for 'cast time'...but it will be here before I know it.

On the one hand, it will be good to get it over with as soon as possible. The sooner the cast goes on, the sooner it will come off. With Kaia being casted in early January, she should be out of it by early April. She would have been in a cast well into May if we started in February. Also, January, February and March are easily the worst weather months here in Canada, (unless you like to ski), so it won't be such a chore to stay indoors.

On the other hand...

MY BABY IS GOING TO BE IN A BODY CAST FOR 3 MONTHS!

No more squishy baby hugs.
No more cute outfits unmarred by the unsightly cast.
No more baths.
No more easy, snap in and out car seat.
No more sleeping in the bassinet in our room. She won't fit, and will have to move to her own crib.
No more easy diaper changes.
No more 'aww, look at the cute baby' when we go out. I'm sure instead we'll get looks of pity and possibly suspicion that Kaia was in some way dropped or hurt. ie: Why is your BABY in a CAST?

It's only 3 months, but when your kid is currently only 5 months old...3 months seems like a LONG time.

Then I remember that kid is Kaia, who after surviving this last year and earning the title "the girl who lived", laughs in the face of 3 months in a body cast.

It's just her parents who will have to get use to the idea.

Boob Juice

After that first month home with Kaia where I was desperately trying to breastfeed I have basically given up the ghost. My girl, besides the occasional boob snack, is a bottle fed baby and I'm an exclusive pumper. I never really wanted to be in this camp, but here we are and generally it's working out. I remember thinking prior to having a baby "why would anyone want to bottle feed? You have to get up in the middle of the night, walk down stairs, heat up the bottle and then walk back up stairs. Wouldn't it just be easier (and cheaper!!!) to pull the baby into bed with you and breastfeed??!" HA! Jokes on me. Now I have to do all the work of a formula fed baby PLUS stay up an extra 30 minutes or more after Kaia goes back to sleep while I pump. Fun times.

The thing about being an exclusive pumper is that you become a little obsessed with breast milk and it's production. So I decided to devote a whole post to my boob juice!

I've recently dropped to 6 pumps per day. I pump around 5:30am, 10amish, 1pm, 4pm, 8pm and 11pm...but it's all adjustable based on what's going on that day. I started out pumping 8x a day, every 3 hours, when Kaia was first born and then dropped to 7 around the time of my grandmother's funeral in August. It's gotten easier to fit pumping into my life with each dropped session. I feel pretty safe that I'll be able to keep Kaia exclusively on breast milk for the foreseeable future as I haven't seen a huge drop in production as I've dropped pumps. According to a lactation consultant I met, your breast milk production is established in the first 6-12 weeks postpartum. Meaning that if you pump (or breastfeed) till you drop those first weeks, you'll reap the rewards of high milk production down the line.

My current long term plan is to keep Kaia exclusively on breast milk until 6 months corrected (so early March) when I will start some solids, however I don't know how this whole spica cast business is going to fit into our lives, so we'll have to see how easy pumping and dealing with Kaia is once we are in a cast in February.

Until Kaia came home from the hospital I was tracking how much I pumped per day to the milliliter (Brian has an app for that). I think I maxed out at around 1200 mls a day (about 42 oz), and currently pump about a 1L (35 oz). Kaia has never taken more than that in a day and I hope I'm safe with aiming for that as my daily goal. Kellymom, a site devoted to breastfeeding and breast milk has studies posted that show breastfed babies usually level out in their breast milk demands at an average of 75o mls/day around 1 month, and stay pretty stable until 6 months when it starts to decrease if you introduce solids. I would say this has shown to be pretty accurate for Kaia. She might eat more per bottle, but is having less bottles per day (and sleeping longer at night!! YEAH!!!)

Many women find they begin to know their bodies better when they start to track their ovulation cycles. Cervical mucus, headaches, breast tenderness, sex drive and period duration can be tracked ad nauseum if you're into that sort of thing (or if you HAVE to be into that sort of thing if you're TTC and it's not happening as quickly as you'd like). Now that I have a kid who I pump for, I have another body function I can watch and track until my heart's content. For example. I can tell when I haven't been drinking enough fluids just by how full my boobs are between pump sessions. If they aren't as 'full feeling' and my let down is slower at my next pump session, I know I need to drink more. Stress also affects these things. If I'm tense or trying to 'hurry' through a pumping session you can bet it's going to take FOREVER to get my usual volumes.

I can also tell you 'fun facts' about breast milk just by my own observations. A friend of mine who exclusively breastfed was talking to me about the prenatal class she went to prior to her daughter's birth. She said she didn't find it very helpful because they couldn't answer many of her questions. One of which was "how long does it take for your 'hind' milk (the fatty stuff) to start to flow when you are feeding?" I could now tell her that it depends on how long you've gone since your last feed (or pump) and how much milk is available overall. The larger the amount of milk to be fed or pumped (such as in the morning after sleeping 6 hours), the larger proportion of it will be watery 'foremilk'. In the morning I usually pump about 300 mls overall and the first 30 mls or so is pretty watery. However later in the day, when I might pump 150 mls, maybe only the first 10 or 15 mls or so is foremilk.

When you refrigerate pumped milk it separates out as it's not homogenized, which is done to cow's milk before it's sold. So human milk in a container will have the 'watery' milk on the bottom and will look almost clear. Then gradually it will get 'whiter' closer to the top. If you've left it in the fridge for longer than a few hours, the fat will separate out and form almost a 'paste' at the top. Brian finds it funny that sometimes this fat layer is so thick that when the milk is turned on its side, it takes a second for liquid milk underneath to 'break through' the fat barrier, creating a 'glop' sound. If you shake the milk the fat is quickly mixed in and the whole container will look like 'normal' milk again. I like looking at the fat at the top and thinking "see...that's the cookies I ate earlier today!" It's fun to see the fat come off me and be transferred into Kaia's cheeks!

Speaking of fat, the calorie content of breast milk is about 20 Calories per oz. So if Kaia is eating 750 mls a day (25 oz) then she is getting about 500 Calories per day. That's about 42 Calories per lb of body weight since she's about 12 lbs. If I had the same metabolism and was growing at the rate Kaia was growing this means I could eat about 5460 Calories per day. Think of all the Christmas goodies that is!

I pump using an Ameda Purely Yours double electric pump. The most popular one these days seems to be Medela as it's sold at Baby's R Us but I've been happy with my Ameda. The customer service was really good when I had to have a part replaced, so that was nice. It's held up very well too considering how much I use it, and it's pretty easy to clean all the parts which is good. I recently did the math and figuring out the number of pumps I do per day, and how long I've been pumping, I've used the pump over 1000 times. One thing that exclusive pumpers should be aware of is that if you suddenly notice a drop in supply, check the parts on your pump. They can wear out over time (as anything made out of plastic does), and may need to be replaced. Pumps and their parts aren't cheap either, mine (with the shoulder bag and cooler bag and extra bottles) was over $300 and I've spent about $50 on replacement parts since then. I'm hoping to get some money back through my insurance as the pump was considered 'medically necessary' due to Kaia's prematurity.

The thing I find hardest about pumping is 'what do I do with Kaia while I pump?' It's a challenge, I'll admit that. Generally when I wake up, it's because she's crying for food. However, as soon as I'm up my boobs start leaking everywhere...so what do I do first? Feed her or pump? Answer? I do both at the same time. First I get up and put on my pumping bra with the breast pads inside to keep me from getting my shirt all wet. Then we go down stairs and heat up a bottle and change her. Then I get my pump parts all set up and in position in the pumping bra. Then I put the boppy pillow on my lap and lay Kaia on it. She eats, while I pump and then we chat or she naps until I'm finished. I prefer not to feed and pump at the same time as it can be kind of awkward, but I do what I have to do during the week. On the weekend it's easier as Brian can feed her if I have to pump.

Speaking of Brian, I think that is the one benefits of exclusively pumping over exclusively breastfeeding. Brian is much more involved in Kaia's care and general well-being because he can bottle feed her. He spends more time with her and is comfortable looking after her on his own. I don't know if that would be the case if she had taken to breastfeeding. I'm glad that Kaia can be looked after by her Dad in the evenings and on weekends as it gives me a break, and I hope that it is the start of a special Daddy-daughter relationship.

If anyone has any questions about exclusively pumping I'd love to try to answer them. It has been challenging to be an exclusive pumper, but I'm so grateful it is working out and Kaia's getting the best I can give her!

Forewarned

Friday night I couldn't sleep. Earlier in the evening we had watched the movie "The Help". I had read the book and was looking forward to seeing the movie. Brian was sitting watching with me and he seemed to be enjoying it....until we got to the part where Celia has her miscarriage in the bathroom. As she's burying the box in the backyard under a rosebush, Brian turns to me and says "Why didn't you warn me?"

Ah yes. Woman laying on the floor. Blood soaking the bathroom. That is a sore spot.

So Friday night as I lay in bed I couldn't help thinking about Aidan, and how the next day, Saturday December 3rd was the 2 year anniversary of my positive pregnancy test with him. I remember that day so clearly. I was so excited. Nervous. Thrilled. Relieved. I never, ever, could have guessed what would happen over the next couple of months. And I wondered, would I have wanted to be forewarned? In that moment when those two lines popped into existence, would I have wanted to know what was coming next? Probably not. Getting that positive test is like jumping off a cliff. You can't go back, so why ruin the moment?

Christmas this year will be easier than last year...but not perfect.

Never perfect.