So I went to my family's doctors last Friday. I got half of what I wanted.
First I found out my prolactin level drawn on July 21st was 27. This is only slightly above normal. Normal is anything less than 20. However, I told my doctor that since having my level drawn in July I've started spotting again before my period. She said that "yes, anything above 20, I would expect your cycle to be thrown off". But I reminded her that as of September-ish of last year my prolactin levels were normal, and I continued to have spotting prior to the period I had before I got pregnant with Aidan. She didn't seem to have an answer for that.
She then told me that we couldn't sort out my progesterone issue until my prolactin issue was under control. Okay. So we decided to repeat my bloodwork. I full expected it to be abnormal.
My bloodwork showed my prolactin is 18.8. Officially normal.
So, it is not the reason for the spotting. My doctor doesn't seem to think the spotting is that much of a concern. She informed me that there is no real evidence to support putting women on progesterone therapy to lengthen luteal phases. She ushered me out of her office basically saying that I'm a mystery and she has no treatment options for me. She did not put me on progesterone therapy like I wanted.
The only good news is that she agreed to my request for a referral to a reproductive endocrinologist.
Now, I'm at a loss as to what to do until then. I feel like I'm in the black hole of 'diagnosis unknown'.
I'm TERRIFIED that if we somehow wind up pregnant while not on any hormonal support, or monitoring, we'll lose the pregnancy due to placenta issues. On the other hand I have no idea how long it will be before we get into see the RE, how long it will be before they determine 'what is wrong with us...if anything' or, worst of all, if the RE looks at us and says "Why are you bothering me with your case? You are obviously fertile. What happened to your son was just bad luck...call me back in a year if you haven't gotten pregnant by then".
It would also KILL me not to try...because a baby is what I want more than anything else in the world...and you obviously don't get one without trying!
My family doctor will do no more. The placenta specialist chalked Aidan's death up to bad luck and a 'possible hormonal imbalance'...but since my periods returned on a 'almost perfect' 26 day schedule I must therefore be 'cured'. If the RE says our problems aren't 'important' enough then...WHAT THE FUCK DO WE DO?
We might be too fertile for the RE. Too infertile for the OB. And no longer the problem of my family doctor.
I cried after each appointment. I'm so ANGRY that I'm doing this again. So disappointed and sad that instead of a 6 week old, I have a baby that's been dead 5 months. So afraid we aren't going to get another chance, or that my body is going to fail me and my child again. I just want people to take me seriously. Take my son's death seriously. Agree with me that it's important that it doesn't happen again. Agree to help me.
Agree to care.
What were the medical practitioners attitudes like after your child died? Did they seem caring and willing to investigate? Did you get the answers you wanted/needed? Did it help?